Faces of SMA BBQ & Silent Auction
August 14, 2021 @ 4:00PM — 9:00PM Eastern Time (US & Canada)
Fighting for Kaiden Foundation's 5th Annual Faces of SMA Annual Fundraiser!
BBQ & Silent Auction
Join other revelers and supporters for an evening of dinner, music, dancing, an open beer and wine bar, wine and beer wheels, silent auction and raffle items plus delicious barbecue! It will be a special night of making memories and raising hope. Attendees will learn more about SMA while members of the SMA community will enjoy a night of support and camaraderie.
Offer your support by purchasing tickets, serving as a sponsor or volunteer or donating auction items. Then enjoy a night supporting those affected by SMA. With your help, we can make a real difference and have an amazing (and delicious) night of fun at the same time.
Who is Kaiden?
The smile that lights up any room belongs to Kaiden. He is a bright, happy six year old loving life and causing kid mischief. Diagnosed at six months with SMA Type 1, he is affected by his illness but not defined by it. He is the inspiration behind our mission of spreading awareness and helping others in their fight with SMA.
What is SMA?
SMA is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the leading genetic cause of death in infants, affecting approximately 1 in 10,000 babies, and about 1 in 50 Americans is a genetic carrier.
It's a energizing time in the SMA community. On December 23, 2016, the FDA approved of the first-ever therapy for SMA, Spinraza. Just over 4 years later and we now have three approved therapies! However, our work is not done. We must continue to develop and deliver effective therapies that will change the course of SMA for everyone affected - from infants to adults - and eventually lead to a cure. We are excited to be supporting essential research.
With your help, we can make a real difference!
We have reserved a block of rooms at a reduced rate - information and booking will be available soon.
Is there a special price for SMA Affected individuals and their families?
Yes! Thanks to our tremendous sponsors, SMA affected individuals and up to two family members are free of charge and will receive one hotel room at the host hotel. Please select the "SMA Affected Individual and up to 2 family members" ticket option above and continue through the ticketing process. For more information and to arrange for a hotel room, please contact Kris at firstname.lastname@example.org or 240-426-7173
I'm excited to bid at the auction but how can I pay?
We will be accepting all major credit cards in addition to checks with ID and cash.
How do I donate an auction item or sponsor the event?
We love handmade and unique auction items. To donate to our silent auction, click here. Our sponsors make it possible for us to donate essential medical equipment, wheelchairs and medical care not covered by insurance. To become a sponsor, click here. For more information please contact the Fighting for Kaiden Foundation at email@example.com or 240-426-7173.
Are there ID requirements or an age limit to enter the event?
ID is not required to enter the event but will be required if you would like access to the open beer and wine bar and the wheels.
Where can I contact the organizer with any questions?
If you have any questions or would like more information, please get in touch with the Fighting for Kaiden Foundation at firstname.lastname@example.org or 240-426-7173.
Do I have to bring my printed ticket to the event?
You do not need to bring a printed ticket, though it may speed the entrance process.
Is my registration/ticket transferrable?
Yes, please contact the Fighting for Kaiden Foundation as early as possible so we know who to expect.
What is the refund policy?
Please contact us if you need to discuss a refund. Our goal is for everyone to have a wonderful evening with us while raising funds Should you be unable to attend, we will do our best to accommodate you.
The name on the registration/ticket doesn't match the attendee. Is that okay?
Yes, please try to tell us ahead of time, but you will still be able to attend.
What should I wear?
Fun, relaxed, festive and ready to dance clothing.
Photo Policy: By registering/purchasing tickets for the Faces of SMA Gala and Silent Auction, you hereby understand that you may be photographed, videotaped, digitally recorded, and voice recorded. By purchasing a ticket you hereby waive any objection, condition, limit, or right you may have to the photographs or recordings.